At The Purple Society 100% of raised funds go directly into helping families fight childhood cancer.
Some of our funded programs are:
Werpurple.org – The premiere online network for all things dealing with childhood cancer. There is no other online childhood cancer network that grants the use of ALL of its tools 100% free. This includes research with a real person along with online tools to get quick accurate information on cancer types, treatment options, chemotherapy regiments, clinical trails, and valuable opinions from top oncologists. The network also provides tools to share your journey with friends and family. Providing educational information to millions of families all over the world.
Trialsmap.org - A privately hosted worldwide clinical trials map focused solely on childhood cancer. Our map ties directly into the data coming from the trial file itself. So when the file is updated, our system is automatically current. Delivering the most up to date clinical trial information available anywhere in the world. We have a team of interactive developers always working in the system to make it easier and better for families to get valuable clinical trial information for their child…free of charge. It’s so effective that even the hospitals are using it!
Nitalia’s Blankets – Delivering thousands of Purple Packages to children’s hospitals across the country. We make, collect, buy, pack and ship blankets, hats, socks, and scarves for children facing cancer. Over the last 3 years, (every Christmas and Spring season) we have delivered thousands and thousands of Nitalia’s Blankets to children. Nitalia started this when she was a patient at St. Jude Childrens Research Hospital in Memphis, Tennessee.
Purple Goodies – Working with our Purple Partners, we collect, sort, bag, and deliver food to families on the oncology floor at hospitalis around the country. Also on a weekly basis we fill the refrigerators and freezers at The Ronald McDonald Houses and Ryan House.
Purple iPic Premieres – Purple Carpet Event for children and their families that are fighting cancer. Together with our Purple Partner iPic Theaters, we create this award show stye event to give the families a night to forget the anguish of the journey they are on. The child in treatment receives a swag bag filled with incredible things to take back to the hospital with them as well as professional family photos and memories to last a life time.
Aside from our staple programs, we help families with their financial burdons by issuing grants to help with Physical, Occupational, and Speech Therapy, donating food gift cards, helping with daily living expenses, helping with travel expenses, and providing medical equipment when necessary. A portion of the funds that are raised from major donations and third-party fundraising go towards expenses and overhead for our interactive network. The Purple Society has NO paid employees.
These are just some of the support systems we have in place for the families. Our goals are to work towards a future where cancer is a thing of the past. Together we can make that a reality.
The Purple Society proposes to participate in the conquest of childhood cancer by supporting collaborative research to identify appropriate targets, discover ways to hit these targets, and carry out clinical trials using the infrastructure of the national cooperative group.
- Collaborative Basic Research: Starting with high-grade gliomas, The Purple Society will support rigorous preclinical investigation of patients’ tumor specimens provided by the CHTN bank to teams of qualified scientists who will agree to work collaboratively and in parallel to share, confirm, and prioritize discoveries and to rigorously evaluate preclinical models for testing in pediatric clinical trials.
- National Phase 1 and 2 clinical trials: The Purple Society will help to expedite development of parallel clinical trials measuring safety and efficacy of new treatments within the infrastructure of the NIH supported national cooperative group, Children’s Oncology Group.
- Access and accrual to trials: The Purple Society will promote awareness of, access to, and participation in clinical trials for patients through our website, personal advocacy, and social media.
- Impact: The Purple Society will continuously evaluate this model of foundation support to develop and facilitate approved and funded clinical trials with a long range goal of adoption by other foundations for other cancers.